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Diabetic Eye Screening: the Birmingham, Solihull and Black Country Data Set

Dataset
Version: 1.0.2 | Published: 3 Jan 2025 | Updated: 34 days ago
Diabetic screening data containing routine community annual longitudinal screening patient results of 200000 patients with screening results per patient ranging from 1 year to 15 years.

Summary

Citation:
Diabetic Eye Screening: the Birmingham, Solihull and Black Country Data Set

Documentation

Description:
Diabetes mellitus affects over 3.9 million people in the UK, with over 2.6 million people in England alone. Diabetic retinopathy (DR) is a common microvascular complication of type 1 and type 2 diabetes and remains a major cause of vision loss and blindness in those of working age. The National Institute for Health and Care Excellence recommendations are for annual screening using digital retinal photography for all patients with diabetes aged 12 years and over until such time as specialist surveillance or referral to Hospital Eye Services (HES) is required. Birmingham, Solihull and Black Country DR screening program is a member of the National Health Service (NHS) Diabetic Eye Screening Programme. This dataset contains routine community annual longitudinal screening patient results of over 200000 patients with screening results per patient ranging from 1 year to 15 years. Key data included are: • Total number of patients screened and graded over a 15 year period. • Demographic information (including age, sex and ethnicity) • Diabetes status • Diabetes type • Length of time since diagnosis of diabetes • Visual acuity • The national screening diabetic screening grade category (seven categories from R0M0 to R3M1) • Diabetic eye clinical features • Reason for sight and severe sight impairment • Screening Outcome (digital surveillance and time; referral to HES) Geography Birmingham, Solihull and Black Country is set within the West Midlands and has a population of circa 5.9million. The region includes a diverse ethnic, and socio-economic mix, with a higher than UK average of minority ethnic groups. It has a large number of elderly residents but is the youngest population in the UK. There are particularly high rates of diabetes, physical inactivity, obesity, and smoking. Data source: The Birmingham, Solihull and Black Country Data Set, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom. They manage over 200,000 patients, with longitudinal follow-up up to 15 years, making this the largest urban diabetic screening scheme in Europe. Website: https://www.retinalscreening.co.uk/ Pathway: The Birmingham, Solihull and Black Country dataset is representative of the patient pathway for community screening and grading of diabetic eye disease. It covers standard UK Public Health England Diabetic Eye Screening requirements and will include patients receiving screening through the standard model, routine diabetic screening, surveillance and slit lamp examination.
Is Part Of:
NOT APPLICABLE

Coverage

Spatial:
United Kingdom, England, West Midlands
Typical Age Range:
12-150
Follow Up:
1 - 10 YEARS
Physical Sample Availability:
NOT AVAILABLE
Pathway:
Dataset is representative of the patient pathway for community screening and grading. It covers standard UK PHE Diabetic Eye Screening requirements and will include patients receiving screening through the standard model, routine diabetic screening, surveillance and slit lamp

Provenance

Origin

Purposes:
CARE
Sources:
EPR
Collection Situations:
  • CLINIC
  • COMMUNITY
  • OUTPATIENTS

Temporal

Accrual Periodicity:
CONTINUOUS
Distribution Release Date:
2020-03-25
Time Lag:
2-4 WEEKS

Accessibility

Access

Access Service:
INSIGHT is developing it's data access environment for researchers. Until such time INSIGHT releases anonymised data,under data licence, into external secure environments.
Delivery Lead Time:
2-6 MONTHS
Jurisdictions:
GB-GBN
Data Controller:
University Hospitals Birmingham NHS Foundation Trust
Data Processor:
NOT APPLICABLE

Format and Standards

Vocabulary Encoding Schemes:
NHS NATIONAL CODES
Conforms To:
LOCAL
Languages:
en
Formats:
SQL

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Diabetic Population forom all ethnic groups from age 12 onwards, total live population in excess of 200,000, with another 100,000 patients in the database who are deceased or have left the programme area
200000
COUNT
2020-03-25