client logo

Glaucoma dataset at University Hospitals Birmingham

Dataset
Version: 1.0.1 | Published: 3 Jan 2025 | Updated: 33 days ago
The University Hospitals Birmingham (UHB) glaucoma dataset is a longitudinal dataset consisting of routinely collected clinical metadata from patients receiving treatment for glaucoma at UHB, from 2007 to the present.

Summary

Citation:
Glaucoma dataset at University Hospitals Birmingham

Documentation

Description:
Background Glaucoma is a worldwide leading cause of irreversible sight loss. Worldwide, an estimated 60 million people have glaucoma. Glaucoma is a condition of increased intraocular pressure in the eye. Because it may be asymptomatic until a relatively late stage, diagnosis is frequently delayed. There are four general categories of glaucoma: primary open-angle and angle-closure, and secondary open and angle-closure glaucoma. The UHB glaucoma dataset is a longitudinal dataset consisting of routinely collected clinical metadata from patients receiving treatment for glaucoma at UHB, from 2007 to the present. This dataset encompasses all patients at UHB who have received a diagnosis of primary or secondary glaucoma or ocular hypertension. Clinical metadata includes demographic information, visual acuities, central corneal thickness, intraocular pressure, optic nerve head findings, and mean deviation of the Humphrey visual fields. This dataset is continuously updating, however, as of 1st October 2021, it consisted of 5065 people This is a large single centre database from patients with glaucoma and covers more than a decade of follow-up for these patients. Geography The Queen Elizabeth Hospital is one of the largest single-site hospitals in the United Kingdom, with 1,215 inpatient beds. Queen Elizabeth Hospital is part of one of the largest teaching trusts in England (University Hospitals Birmingham). Set within the West Midlands and it has a catchment population of circa 5.9million. The region includes a diverse ethnic, and socio-economic mix, with a higher than UK average of minority ethnic groups. It has a large number of elderly residents but is the youngest population in the UK. There are particularly high rates of diabetes, physical inactivity, obesity, and smoking. Data source: Ophthalmology department at Queen Elizabeth Hospital, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom.
Is Part Of:
NOT APPLICABLE

Coverage

Spatial:
United Kingdom, England, West Midlands
Typical Age Range:
12-150
Follow Up:
> 10 YEARS
Physical Sample Availability:
NOT AVAILABLE
Pathway:
The UHB glaucoma dataset is representative of the patient pathway for diagnosis and treatment of glaucoma, and longitudinal follow-up.

Provenance

Origin

Purposes:
CARE
Sources:
EPR
Collection Situations:
  • CLINIC
  • IN-PATIENTS
  • OUTPATIENTS

Temporal

Accrual Periodicity:
ANNUAL
Distribution Release Date:
2021-10-01
Start Date:
2006-08-01
End Date:
2021-09-20
Time Lag:
2-4 WEEKS

Accessibility

Access

Access Service:
INSIGHT adheres to HDRUK data access principles including the five SAFES; anonymised data is provided into an agreed Trusted Research Environment such as the PIONEER Microsoft Azure TRE at University Hospitals Birmingham NHSFT or equivalent external safe environment, under data license.
Delivery Lead Time:
2-6 MONTHS
Jurisdictions:
  • GB-ENG
  • GB
Data Controller:
University Hospitals Birmingham NHS Foundation Trust
Data Processor:
NOT APPLICABLE

Usage

Data Use Limitations:
RESEARCH SPECIFIC RESTRICTIONS
Data Use Requirements:
PROJECT SPECIFIC RESTRICTIONS
Resource Creators:
University Hospitals Birmingham NHS Foundation Trust
Is Referenced By:
Not available

Format and Standards

Vocabulary Encoding Schemes:
NHS NATIONAL CODES
Conforms To:
LOCAL
Languages:
en
Formats:
  • SQL
  • CSV

Enrichment and Linkage

Qualified Relations:
None
Derivations:
Not Available

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
5065 patients
5065
COUNT
2021-10-01