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Eye images and retinopathy grades in diabetic eye screening

Dataset
Version: 1.0.1 | Published: 3 Jan 2025 | Updated: 25 days ago
The dataset is a longitudinal dataset consisting of eye images and retinopathy grades from those who are screened for diabetic retinopathy in the Birmingham, Solihull and Black Country DR screening program.

Summary

Citation:
Eye images and retinopathy grades in diabetic eye screening

Documentation

Description:
Background Diabetes mellitus affects over 3.9 million people in the United Kingdom (UK), with over 2.6 million people in England alone. Diabetic retinopathy (DR) is a common microvascular complication of type 1 and type 2 diabetes and remains a major cause of vision loss and blindness in those of working age. The National Institute for Health and Care Excellence recommendations are for annual screening using digital retinal photography for all patients with diabetes aged 12 years and over until such time as specialist surveillance or referral to Hospital Eye Services (HES) is required. Birmingham, Solihull and Black Country DR screening program is a member of the National Health Service (NHS) Diabetic Eye Screening Programme. This dataset contains routine community annual longitudinal screening patient results of over 200000 patients with screening results per patient ranging from 1 year to 15 years. Key data included in this imaging dataset are: • Fundal photographs • The national screening diabetic grade category (seven categories from R0M0 to R3M1) • Screening Outcome (digital surveillance and time; referral to HES) Geography Birmingham, Solihull and Black Country is set within the West Midlands and has a population of circa 5.9million. The region includes a diverse ethnic, and socio-economic mix, with a higher than UK average of minority ethnic groups. It has a large number of elderly residents but is the youngest population in the UK. There are particularly high rates of diabetes, physical inactivity, obesity, and smoking. Data source: The Birmingham, Solihull and Black Country Data Set, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom. They manage over 200,000 patients, with longitudinal follow-up up to 15 years, making this the largest urban diabetic screening scheme in Europe.
Is Part Of:
Not Applicable

Coverage

Spatial:
United Kingdom, England, West Midlands
Typical Age Range:
12-110
Follow Up:
> 10 YEARS
Physical Sample Availability:
NOT AVAILABLE
Pathway:
The Birmingham, Solihull and Black Country dataset is representative of the patient pathway for community screening and grading of diabetic eye disease. It covers standard UK Public Health England Diabetic Eye Screening requirements and will include patients receiving screening through the standard model, routine diabetic screening, surveillance and slit lamp examination.

Provenance

Origin

Purposes:
CARE
Sources:
EPR
Collection Situations:
  • CLINIC
  • IN-PATIENTS
  • OUTPATIENTS

Temporal

Accrual Periodicity:
ANNUAL
Distribution Release Date:
2021-10-01
Start Date:
2020-11-30
End Date:
2021-03-31
Time Lag:
2-4 WEEKS

Accessibility

Access

Access Service:
INSIGHT adheres to HDRUK data access principles including the five SAFES; anonymised data is provided into an agreed Trusted Research Environment such as the PIONEER Microsoft Azure TRE at University Hospitals Birmingham NHSFT or equivalent external safe environment, under data license.
Delivery Lead Time:
2-6 MONTHS
Jurisdictions:
  • GB-ENG
  • GB
Data Controller:
University Hospitals Birmingham NHS Foundation Trust
Data Processor:
NOT APPLICABLE

Usage

Data Use Limitations:
RESEARCH SPECIFIC RESTRICTIONS
Data Use Requirements:
PROJECT SPECIFIC RESTRICTIONS
Resource Creators:
University Hospitals Birmingham NHS Foundation Trust

Format and Standards

Vocabulary Encoding Schemes:
NHS NATIONAL CODES
Conforms To:
  • LOCAL
  • HL7 CCOW
Languages:
en
Formats:
  • SQL
  • CSV
  • Images

Enrichment and Linkage

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Over 200,000 patients 2.5 million grading events at any level 1.68 million gradings including ophthalmology referrals 1 million final grades from community screens Over 6 million images over 15 years
200000
COUNT
2021-10-01