UHB Linked Diabetic Eye Disease from National Screening to Hospital Eye Care
Dataset
Summary
Citation:
UHB Linked Diabetic Eye Disease from National Screening to Hospital Eye Care
Documentation
Associated Media:
Description:
Background: Diabetes mellitus affects over 3.9 million people in the United Kingdom (UK), with over 2.6 million people in England alone. Diabetic retinopathy (DR) is a common microvascular complication of type 1 and type 2 diabetes and remains a major cause of vision loss and blindness in those of working age. This dataset includes the national screening diabetic grade category (seven categories from R0M0 to R3M1) from the Birmingham, Solihull and Black Country DR screening program (a member of the National Health Service (NHS) Diabetic Eye Screening Programme) and the Queen Elizabeth Hospital, University Hospitals Birmingham NHS Trust ophthalmology treatment and visual outcome data.
Geography: The West Midlands has a population of 5.9 million. The region includes a diverse ethnic, and socio-economic mix, with a higher than UK average of minority ethnic groups. It has a large number of elderly residents but is the youngest population in the UK. There are particularly high rates of diabetes, physical inactivity, obesity, and smoking.
Data sources:
1. The Birmingham, Solihull and Black Country Data Set, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom. They manage over 200,000 diabetic patients, with longitudinal follow-up up to 15 years, making this the largest urban diabetic eye screening scheme in Europe.
2. The Electronic Health Records from the Ophthalmology clinic at Queen. Elizabeth Hospital, University Hospitals Birmingham NHS Foundation.
Scope: All Birmingham, Solihull and Black Country diabetic eye screened participants who have been see in ophthalmology outpatients at University Hospitals Birmingham NHS Foundation from 2006 onwards. Longitudinal and individually linked with their diabetic eye care from primary screening data and secondary hospital eye care including • Demographic information (including age, sex and ethnicity) • Diabetes status • Diabetes type • Length of time since diagnosis of diabetes • Visual acuity • The national screening diabetic screening grade category (seven categories from R0M0 to R3M1) • Diabetic eye clinical features • Reason for sight and severe sight impairment • Ocular treatment including laser treatment and surgical treatment • Visual Outcome
Is Part Of:
NOT APPLICABLE
Coverage
Spatial:
United Kingdom, England, West Midlands
Typical Age Range:
12-110
Follow Up:
> 10 YEARS
Physical Sample Availability:
NOT AVAILABLE
Pathway:
This dataset is representative of the patient pathway for community screening of
diabetic eye disease and grading. This DES dataset is linked within this dataset
to include those patients who were then subsequently seen at the Ophthalmology
Department at the Queen Elizabeth Hospital, University Hospitals Birmingham NHS
Trust for worsening of their diabetic eye disease. This limits the dataset to
only those patients who have been seen both in screening and then subsequently
in the hospital for eye disease
Provenance
Origin
Purposes:
CARE
Sources:
EPR
Collection Situations:
- CLINIC
- IN-PATIENTS
- OUTPATIENTS
Temporal
Accrual Periodicity:
ANNUAL
Distribution Release Date:
2021-07-31
Time Lag:
2-4 WEEKS
Accessibility
Access
Access Rights:
Access Service:
INSIGHT adheres to HDRUK data access principles including the five SAFES;
anonymised data is provided into an agreed Trusted Research Environment such as
the PIONEER Microsoft Azure TRE at University Hospitals Birmingham NHSFT or
equivalent external safe environment, under data license.
Access Request Cost:
Delivery Lead Time:
2-6 MONTHS
Jurisdictions:
- GB-ENG
- GB
Data Controller:
University Hospitals Birmingham NHS Foundation Trust
Data Processor:
NOT APPLICABLE
Usage
Data Use Limitations:
RESEARCH SPECIFIC RESTRICTIONS
Data Use Requirements:
PROJECT SPECIFIC RESTRICTIONS
Resource Creators:
University Hospitals Birmingham NHS Foundation Trust
Is Referenced By:
Not applicable
Format and Standards
Vocabulary Encoding Schemes:
NHS NATIONAL CODES
Conforms To:
LOCAL
Languages:
en
Formats:
- SQL
- Images
- CSV
Enrichment and Linkage
Qualified Relations:
None
Tools:
Derivations:
Not Available
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Data of patients seen in Diabetic Retinopathy screening service and in the hospital opthalamology department
18782
COUNT
2021-02-22